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Costs of Care.

It was his third visit to the emergency room in three days. The staff immediately recognized him. In the past year, he visited the ER over 100 times. That’s twice a week, every week. The ambulance services also knew him well. Good Samaritans would call 911 about a man who was lying in the gutter. Ambulance workers found him on the streets, barely conscious, and reeking of alcohol.

His liver was rotting from the incessant flow of liquor. As a result, fluid that his body could not absorb pooled in his belly. Doctors used long needles to drain it, liter by liter. He spent days in the detoxification unit. Nurses regularly hovered over him, watching for tremors that could quickly overflow into seizures.

Though he had returned years ago from the war, his mind was still overseas. Crowds made him uncomfortable, visions of mangled bodies invaded his thoughts, and guilt overwhelmed his conscience. A half-pint of whiskey helped him forget all of that. A few tall cans of beer dulled the pain in his belly; three or four more helped him ignore the strangers who looked at him with disgust. Finally, a pint of vodka put him to sleep at night. Alcohol was his constant companion, the only one who understood, the only one who brought him comfort.

That comfort never lasted. Only after the alcohol had washed out was he aware that he was killing himself. In the hospital bed, he was contrite and swore that he would never drink again.

With a pocket stuffed with prescriptions—this one is to prevent the fluid from collecting in your belly, this one is to keep toxins out of your blood, this one is to decrease craving for alcohol—he wandered out of the hospital with only a referral to the homeless shelter. Where else could he go? There he learned to use his shoes as a pillow so no one would steal them, though sleep eluded him because of the crowded and noisy conditions. People bullied him for money and food. Shelter workers had little power to protect him. Fed up with the constant chaos there, he fled back to the streets and sought refuge in windowless alleys. Police officers gave him tickets, then arrested him, for trespassing and sleeping outside. Youths, seeking entertainment, urinated on him or tried to set him on fire.

Burdened with this additional stress, he believed that liquor was his only savior.

His unpaid hospital bills—fees for ambulances, emergency room visits, medical procedures, nursing care, medications, lab tests, meals—came to hundreds of thousands of dollars. Everyone knew that the costs of his care would only increase if his cycles in and out of the hospital continued. Something had to change.

So, instead of sending him to the shelter after another admission for alcohol detoxification, the hospital referred him to a supportive residence. He now had an austere room to himself. A dedicated group of people worked with him so that he could get better. They were invested in keeping him indoors, out of trouble, and away from alcohol. If he did leave to drink, he was nonetheless welcome back inside. These caseworkers talked with him about his drinking and his health. They encouraged him to take care of himself. People believed that the costs of this intervention would be less than the costs to society otherwise.

Though it took time for him to settle in, he eventually drank less alcohol. He returned nightly to the residence and avoided the police patrols. He started visiting his physicians at their clinics regularly. No one needed to call 911 for him anymore and, as a result, his hospital visits decreased significantly. Though he still avoided people and crowds, he began to smile. So did everyone else.

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Medication Adherence.

You’re taking your medications every day, right?” the doctor asked.

“Yeah, yeah,” he said.

“Good. Here are prescriptions with three refills each.”

“What’s the green pill for again?”

“The green pill?”

“Yeah, the green pill, the one kind of shaped like an egg?”

“Uh, I’m not sure. You can ask the pharmacist when you pick up your medications. But if you’re taking all of them, then you’re doing the right thing.”

“Okay, doc. Thanks.”


When he got home from the pharmacy, he placed the white paper bag on the table. Dropping himself into a chair, he tore through the stapled top of the bag and pulled out the plastic orange vials. He arranged them in a row on the table.

“One, two, three, four…” he counted as he tapped the white caps. “… ten, and eleven.”

Glancing up, he reached for the shallow candy dish near the middle of the table. A few colored specks were caught within the spaces created by the etchings in the glass.

His eyes passed over the labels on the vials:

  • Take one tablet by mouth twice daily.
  • Take one tablet by mouth every day.
  • Take one tablet by mouth every night.
  • Take…

He quickly removed the twist-off caps. His fingers fished out the wads of cotton, which he left on the table. He poured all the pills into the candy dish. His right index finger stirred them into a colorful mixture.


Before going to bed that night, he picked up his toothbrush. His eyebrows suddenly lifted.

“Meds,” he mumbled.

He carried a drinking glass from the bathroom out to the kitchen. He scooped up a handful of medications and examined his hand to make sure he got at least one of every color and shape. He tossed them into his mouth and chased them down with water from the glass.


“You take your medications every day, right?” the doctor asked him the next month.

“Yeah, of course,” he said.

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Genetics.

Father and daughter sat in vinyl-covered chairs that were bolted to the floor. Few other people sat in the waiting room. The heavy door of the psychiatric emergency room was closed and locked.

“She’ll be fine. We’ll be fine,” Father said, his elbows resting on his knees. He examined the intersection of the lines where the floor tiles met. The wedding band on his finger was loose.

“Yeah. At least you’re not actually related to her,” Daughter murmured, picking at a loose thread in a seam of her jacket.

Father turned his head and looked at Daughter. He leaned back and put his arm around her. She turned away for a few moments, though eventually rested her head against his arm.

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Assumptions.

Which patient would you rather work with?

Patient 1:

This patient is not doing anything to take care of her health. She never listens to my recommendations. If she would take medications as directed, she’d feel better. She doesn’t care about her medical problems. She’s not even trying. If she keeps this up, she’s going to die. Plus, she’s so demanding. She’s a piece of work.

Patient 2:

Things seem to get in the way of this patient’s ability to take care of her health. I wonder if she understands my recommendations. She is trying her best to take her medications as directed. What else can I do to help her learn about her medical issues? There might be a lot of other things going on that worry her more than her medical problems. I wonder if she knows the consequences of her choices. She is skilled at advocating for herself. I feel frustrated when I see her, but let’s see what she will teach me.


They are the same patient.

Now: Do you want to be “right”? Or do you want to be effective?

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The F Train.

It was close to 6pm and, as usual, the uptown F train was crowded. People on the platform glanced at the subway as it pulled into the station. One of the cars had plenty of standing room. When the doors opened, several people rushed out. Some people walked in, then walked right back out again.

Two ladies rushed through the turnstiles and, upon hearing the announcement, “Stand clear of the closing doors, please,” they dashed into the car. They smiled at each other in congratulations and then looked around.

Seated near the end of the car was a man who appeared to be asleep. His thin frame was lost in two dirty jackets and baggy jeans with tattered hems and a hole in the crotch. Bits of food were caught in his scraggly beard. His legs were splayed out in front of him and his hands, soiled with dirt, were resting on his lap. The odors of sweet alcohol and fetid sweat emanated from him.

New passengers looked at him, their noses crinkled. Saying nothing, they moved as far as they could to the other end of the car. Often this meant taking a mere two steps away.

One of the two ladies was wearing a golden mink coat. An Artsy GM Louis Vuitton bag hung from her wrist and strappy heels that bore the intersecting letters of Chanel were on her feet. She turned to her companion, clad in a white Marc Jacobs Balmacaan raincoat and Jimmy Choo Cosmic platform shoes, and waved her hand in front of her nose.

“It smells terrible in here!” Mink Coat exclaimed, shaking her head. Her dark tresses shifted on her shoulders. “He smells so bad!”

The train rattled as it entered the dark tunnel. A few people turned the pages of their magazines.

Raincoat glanced at the man and stuck out her tongue in disgust. “I know. I don’t think I can stay in this car!”

A man at the other end of the car sneezed. The subway lurched to the left.

“Let’s switch cars at the next stop,” Mink Coat suggested. “It’s hard for me to breathe.”

A woman looked up from her Kindle and glanced at the two ladies. The man next to her suddenly snapped his eyes open when he realized that he was listing to the right.

“That’s a good idea,” Raincoat said, vigorously nodding her head. “He smells worse than trash. I wish the train would hurry up.”

The young man leaning against the door marked with the words “Do not lean on door” plucked his mp3 player out of his pocket and glanced at the screen.

“This is 42nd Street, Bryant Park,” the automated voice announced as the subway burst out of the darkness into the illuminated station. The subway suddenly decelerated. Someone mumbled apologies as he inadvertently bumped into his neighbor.

“Thank God,” Mink Coat said, getting as close to the door as she could. The sleeping man quietly burped.

“Gross,” Raincoat mumbled.

“Do you want to go left or right?” Mink Coat said as the subway came to a halt.

“It doesn’t matter. Just get us away from the stink!”

When the doors slid open, the two Coats stepped out quickly, sighing loudly. The sleeping man shifted in his seat, his chin dropping to chest.

“Stand clear of the closing doors, please.”