Categories
Lessons Medicine Nonfiction

Treatment Options.

Reading this essay, A Major Problem With Compulsory Mental Health Care Is the Medication, made me think of the following anecdote. I’ll say more about compulsory mental health care (also called involuntary psychiatric treatment) and involuntary medications in a separate post.

Long time readers (from 2004—close to 20 years ago! thanks for spending decades with me!) will recall a physician I dubbed the Special Attending. (In this post from 2019 I identify him by his first name, Matthew.) I am certain that I wrote about the following anecdote at the time it happened; I was upset and distressed. The Special Attending was not a desirable flavor of “special” at this point. Frankly, I believed he was unnecessarily cruel and unfeeling.

I was an intern on the general medicine service. The patient was an elderly, frail woman with multiple medical conditions. She looked and sounded ill; the numbers from her blood and imaging studies confirmed her health was deteriorating.

The senior resident, the other intern, and the medical students all expressed concern about her viability. She looked miserable; she told us with her weak voice that she felt exhausted and uncomfortable. Why are we still poking and prodding her? we wondered. What are we doing?

“We should put her on comfort care,” someone offered. This quickly became the team consensus. We all knew the adage: Cure sometimes, relieve often, comfort always. With confidence that bloomed from the shallow earth of inexperience, we believed that none of our interventions would cure her. The pathway to relief, from our distressed perspective, was only through comfort care.

We—probably me, since this was my patient—proposed this plan with certainty to the Special Attending.

“No,” he replied. It wasn’t that he uttered only one syllable and nothing more. He was frowning. Though I had only worked with him for a few days, it was clear that he was radiating disappointment and disapproval.

Maybe it was me; maybe it was someone else with more courage who finally sliced into the uneasy silence by asking, “Why?”

Because we haven’t tried everything yet, he tersely answered, making no eye contact with any of us. There are still things we could do.

After rounds, we grumbled as a team. “Why is he making us do this?” we whined. “We’re the ones who have to tell her about next steps and do all the things. She’s not going to want this. She’s already suffering so much.”

See, the thing is, we couldn’t tolerate her suffering. We couldn’t bear to witness the deterioration of her body. We didn’t want to try another thing that would fail and prolong our mutual suffering. And what better way to help us escape than by limiting options and withdrawing?

So what does this anecdote have to do with involuntary psychiatric treatment?

My own view is that involuntary psychiatric treatment (inclusive of detention and medications) is a bad outcome. It means that multiple systems failed. The Big We either did not intervene earlier or care to intervene sooner. The Big We didn’t create or maintain enough options to avert this undesired result.

(To be clear: I have provided involuntary psychiatric treatment. It’s not an option I ever want to choose. I never feel great about it.)

We must create as many options as possible for people to receive care and treatment. We must tell people about these options and eliminate barriers so people can access them with ease. When you’re already feeling terrible, the last thing you want to do is climb uphill to knock on doors that won’t open.

It’s hard to witness suffering, but dealing with our discomfort is a problem for us to solve. For those who are suffering, they should not have to solve our discomfort, too.

In retrospect, I wish the Special Attending had explicitly talked with the team about our distress from witnessing the woman’s suffering. It doesn’t have to be a “processing” conversation or “touchy feely”. It could have been something like, “It’s hard to witness someone who is really sick. Our job, though, is to think of and share all treatment ideas with patients. They trust us to help them, so we must try. We can’t give up and look away, though, just because it’s hard for us. We are talking about this woman’s life.”

In the end, we talked with the woman about another treatment plan. She agreed to it. It didn’t help. And that’s when the Special Attending said, “Now we can talk with her about comfort care.”

Categories
Homelessness Observations Reading

The Guest Who Has No Place to Live.

Inspired by this tweet (“This book is viscerally upsetting, lol. What the fuck”), I read The Guest by Emma Cline.

The inside flap offers an accurate description of the story: Alex makes a “misstep at a dinner party” and ends up wandering around Long Island. She has “few resources and a waterlogged phone, but [is] gifted with an ability to navigate the desires of others.” She is indeed “propelled by desperation and a mutable sense of morality” and “a cipher leaving destruction in her wake.”

And, yes, the book is viscerally upsetting.

Is the story about status and hierarchies? Yes. Is it about appearances and identity? Yes. Is it about the transactional roles young women play in American society? Yes.

Is it about a young woman who has nowhere to live? Yes: Alex is homeless.

This is not the reason why I chose to read this book. (Honestly, the only thing I knew about the book was from that tweet. We can wonder together why I wanted to read something “viscerally upsetting”).

It’s not Alex’s status as a homeless person that turns the stomach. (I don’t even know how many readers use the frame of homelessness while reading this story.) It’s the odious nature of her choices, how unsettling her behavior is. She is not endearing. (Kudos to Cline for creating a character who is unlikeable yet compelling.) We readers get caught up in the appearances of luxury and decadence that we forget that Alex is trying to find a stable place to live.

We never learn Alex’s backstory; we don’t know where she is from, what happened to her in the more distant past, or how she came to behave this way. Part of the point of the novel, I think, is that we can never know: Appearances are what matter. You can tell any story you want to get your needs met.

For readers who want to make their lives more difficult (…), this book introduces uncomfortable questions related to homelessness:

  • If a young woman is despicable, does she deserve to be homeless?
  • What do we want to happen to young women we don’t like? Do we want them to suffer? Is homelessness a sufficient punishment?
  • Do we therefore assume that all people who are homeless must have done terrible things?

Then there’s the question of redemption. The events of The Guest unfold over the course of one week. Do we think Alex could ever redeem herself? What if it takes a year? or five?

Should people who are unlikeable be homeless until they redeem themselves?

Maybe Alex is a cipher, but, more importantly, she has no place to live. That’s why she’s “propelled by desperation and a mutable sense of morality”. Perhaps we take comfort in the idea that Alex is a character, that this is a novel.

  • Would we make similar choices if we were in Alex’s situation?
  • Could we also do such unlikeable things if we were homeless?

What if the homeless young women we encounter aren’t anything like Alex? Might we want to make different choices ourselves?

(And, yes, to be clear, I do recommend The Guest.)

Categories
Medicine Observations Systems

On Who People Think You Are.

The author wearing a black face mask while holding a soft serve cone. The wall behind her features a cone that looks like a fish that has green soft serve in it.
A photo of yours truly wearing a mask. Photo credit to Amy L.

There were two patients in the hospital room. Both were elderly East Asian males, each reclining in his bed. The curtain that divided the room in half was pulled forward, offering the illusion of privacy. Sound still travels through cloth.

Outside the hospital room I rubbed sanitizer onto my hands. The only size of blue plastic gowns offered was extra-large. My arms swam through the enormous sleeves as I pulled the gown over my yellow sweatshirt. The only gloves available were size large, which I slid onto my hands before putting goggles on my face. I was already wearing an N95 mask. Only my black track pants and black sneakers emerged from my blue contact precautions.

My dad had alerted me that, overnight, he was moved from a private isolation room into a shared room. His roommate, though ethnically Chinese, spent much of his life in a different country in Asia. He spoke limited English. They quickly discerned that they both speak Chinese.

Within a few minutes, I pushed the curtain back so the divided room became whole. Chinese conversation flowed among the three of us, punctuated by occasional wet coughs rattling through the torsos of the two men.

If I looked right, I could see through the window in the door. Sometimes staff walked by, paused, and waved. One was a man in his fifties who, at one point, opened the door and said to me, “We’re thinking we might discharge him today.” He gave me a thumbs up sign and shut the door before I could respond. He wasn’t my father’s doctor.

Later, my father’s nurse walked in and asked who I was. “Oh,” she commented, “I thought you were the interpreter.”

The other man’s nurse walked in minutes after that and asked who I was. “Oh,” she said, “I thought you were a physical therapist.”

Later, in the hallway, the man who appeared to be in his fifties waved me down. He was wearing a long white coat and there was a red label on his ID badge that said “Doctor”. His eyes smiled at me as he asked, “How is your dad doing?”

I paused before asking, “May I ask who you think my dad is?”

“Mr. Other Guy,” he said effortlessly.

“That’s not my dad.”

“Oh?”

“The other Asian man is my dad.”

“Oh.” He was anchored in awkwardness.

“Thanks for taking care of Mr. Other Guy,” I said before walking away, releasing the anchor. He waited a beat before veering off in the other direction.

Categories
Blogosphere Lessons Nonfiction Reading Reflection

Time Millionaires, etc.

A cartoon illustration of a father and son aging together, from birth to the grave.
Artwork by Pascal Campion

Since my last post, I have recovered from illness, though spasms of coughing still occasionally overtake me. Other circumstances have changed, too, that have highlighted to me the importance of spending time with people we love. American culture often focuses on becoming financial millionaires when becoming time millionaires is vastly more important.

Here are some things I read while recuperating that may be of interest to you:

What My Father’s Martial Arts Classes Taught Me about Fighting Racism. “Self-defence means to protect yourself, to protect others around you, and to protect your opponent from committing a crime.”

The Politics of Paying Real Rent Duwamish. This is of greatest interest to people who live in the Seattle-King County area. After reading this article I stopped paying Real Rent. The tagline is accurate: “Why a simple act belies a complicated history.”

“A 1996 Super Mario 64 manga suggests that 1-Up Mushrooms grow from the bodies of dead Marios, perpetuating the cycle of life and death.” The image is what drew me in.

What It Felt Like to Almost Die. “My near-death experience taught me not to fear those final moments.” I hope that this is true for us all.

Generation Connie. I am a bit older than the cohort of Asian American women who were named Connie (and my father said that my parents never considered the name Connie for me), though I definitely remember seeing Connie Chung with Dan Rather when I was growing up. Fun photos in the article.

A Killing on the F Train. Of all the writing I’ve read about Jordan Neely, the man experiencing homelessness and psychiatric symptoms in NYC who died when another subway passenger restrained him (via chokehold), this piece by John McWhorter resonates the most with me. His perspective is kind, nuanced, and empathic. Highly recommended.

Categories
COVID-19 Nonfiction

A Plan = A Thought.

Since the onset of the pandemic, I have taken many steps to keep myself healthy. This was all in the service of making sure I didn’t give Covid to my elderly father.

(“Making sure.” The arrogance of that statement!)

The grand irony is that I ended up getting Covid from my father.

The universe reminds me again that a plan is just a thought.