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Education Lessons NYC Policy PPOH

Assertive Community Treatment.

While at PPOH, I spent two days a week working with an Assertive Community Treatment (ACT) team.

ACT is somewhat like a psychiatric hospital outside of a hospital. It is an evidence-based practice[1. From the New York State Office of Mental Health: “When comparing recipients before and after receiving ACT services, studies have shown ACT recipients experience greater reductions in psychiatric hospitalization rates, emergency room visits and higher levels of housing stability after receiving ACT services. Research has also shown that ACT is more satisfactory to recipients and their families and is no more expensive than other types of community-based care.”] that features a multidisciplinary team (social workers, psychologists, psychiatrists, nurses, case workers) that works with a small group of patients who often experience impairing psychiatric symptoms. It provides comprehensive and flexible psychiatric services. All of the care occurs in the community.

The ACT team I worked on was staffed with:

  • one program director (social worker)
  • one team leader (social worker)
  • one MICA (“mental illness and chemical addiction”) specialist (social worker)
  • one vocational specialist (social worker)
  • one entitlements specialist (almost-graduate from social work school)
  • two case workers (one who had recently earned a social work degree)
  • one registered nurse
  • one secretary (who did much more than clerical work)
  • two psychiatrists (our combined hours did not fill a full-time position)

During my time there, I provided care for about 35 patients. (The other psychiatrist provided care for the other 35 patients.) The staff to patient ratio is purposely kept low, as ACT is considered an intensive intervention.

Patients who are referred for ACT services must have been psychiatrically hospitalized (often involuntarily) at least four times in the past year. They often have multiple emergency room or mobile crisis visits. Other outpatient services have often failed or have been insufficient to prevent crises and hospitalizations.

Thus, a chief goal of ACT is to keep people out of the hospital.

The ACT model dictates that the team (as a whole) must make a total of at least six contacts with each client[2. There is a movement in mental health—and in other parts of medicine—to move away from the term “patient”. In this particular ACT setting, patients were called “clients”. Sometimes they are called “consumers”.] every month, preferably in the community. One of these visits should be a meeting with the psychiatrist. Some patients regularly came to the office for their visits. Others, however, could not or would not come in. We thus went out to them. (Hence the adjective “assertive”, which, in some cases, could be construed as “coercive”. More about coercion later.)

If I did not see patients in the office, I often saw them in their apartments. (Limits and boundaries do not blur, but they certainly shift. My experiences in these residential settings inspired this post. To be clear, there were a few individuals who I never met alone. I insisted they meet me outside or in the clinic. Some of this was due to their past behaviors; some of this was my gut instinct.) For those who did not feel comfortable meeting in their apartments, we met in lobbies, parks, or chatted during walks. (During my time on ACT, I came to value talking and walking as a therapeutic intervention.)

ACT was formerly deemed “long term care”; some patients have been on ACT teams for over a decade. (This is often due to repeated psychiatric hospitalizations despite ACT services.) Most of the patients had psychotic disorders (such as schizophrenia) and, surprisingly, many of them had actively involved family members. I suspect that this impacted who was referred to ACT; family members were often the ones bringing people to the hospital for care (versus calling the police, etc.) Most patients “graduate” from ACT within a few years: They stay out of the hospital, become more involved in the community, and no longer need that level of care.

I learned in this position that people with chronic psychotic disorders can get better. Their symptoms decrease. They learn how to temper their behavior so that they do not attract undue attention while out in the community. They set and reach personal goals, like earning high school and college degrees, securing employment, getting sober from alcohol and drugs, and taking care of their physical health. They stop smoking! Sometimes they need a lot of support and a number of years need to pass before things settle down, but people with diagnoses of schizophrenia are not doomed to a life of poverty and “low function”.[3. The public rarely hears about positive outcomes for people with schizophrenia. There is research that suggests that a significant number of people with diagnoses of schizophrenia either experience improvement or recovery of their condition. Anecdotally, I agree.]

I also learned the importance of seeing patients in their environments. So much of contemporary medicine now occurs outside of a person’s living situation. That is often appropriate and fair (e.g. patients shouldn’t undergo surgery in their own homes). Because of the intimate nature of medicine, meeting in a “third” location can help preserve privacy and security. However, we can learn so much about how people function (or do not function) when we see their living spaces. We also realize strengths that we would otherwise overlook. A neat home, a sack full of old prescription pills, vinyl records of classical music, papers all over the floor, photographs of friends and family, roaches climbing over dozens of empty cans of soda: All of that is information that doctors often never have.

It is amazing how people live their lives. It is remarkable how much people will tolerate. And it is humbling that people are willing to share their lives with you.


Categories
Education Informal-curriculum Lessons

The Value of Interruptions.

That interview didn’t go well at all. The patient wouldn’t let me get a word in! That little old lady just kept talking and talking and talking. It’s like she thought we had all the time in the world to talk about her children.”

“It was hard to interrupt, huh.”

“Yeah! It seemed like she really wanted to tell me about her kids. I didn’t want to be rude.”

“Of course it feels rude to interrupt people. We’re taught to wait our turn and listen when other people talk.”

“Yeah.”

“When you’re interviewing patients, though, it’s not a usual social conversation. Social skills are still important, but the context is different.”

“What do you mean?”

“Do you routinely ask your friends if they’re in pain? Have you asked your medical school classmates if they’re passing gas? How about your parents? Do you know if they’re taking their medications as directed?

“Oh….”

“Even though we might use our usual words and gestures in conversations with patients, we’re not having routine social interactions with them. You need to get as much accurate history from patients as possible. Accurate histories[1. “Listen to your patient, he is telling you the diagnosis.”] lead to accurate diagnoses, which lead to proper treatment.”

“Right.”

“To be clear, you don’t want to be a jerk when interrupting patients. Practicing and learning the skill of interrupting, while you’re still a student, will serve you well in the future.”


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Education Homelessness Lessons NYC PPOH

The Geriatric Adult Home.

During my time at PPOH, I spent one day a week working at a geriatric adult home.

An adult home is a residence that generally houses people with psychiatric conditions. They can be run by either public or private agencies. At best, they provide services and supports for the residents so they can live independently. At worst, they provide very little other than shelter; they just take people’s money. (The latter has resulted in a court order to shut down adult homes in New York.)

This particular adult home was small and housed people over the age of 60. My oldest patient was close to 100 years old. Before I started working there, I assumed that most of my patients would have cognitive impairment, such as mild to moderate dementia.

Well, I was wrong.

Certainly some of them had cognitive problems, but the majority of my patients had psychotic conditions, such as schizophrenia. Some of them had worked with numerous psychiatrists during their lifetimes, taken astounding amounts and types of psychiatric medication, and spent months to years in state psychiatric hospitals. A few of them reportedly underwent procedures like insulin shock therapy.

That they were still willing to talk to any psychiatrist humbled me.

Some of them had significant alcohol problems. Thankfully, most of them had stopped drinking by the time I met them. A few of them achieved sobriety after the age of 70.

Some of them had extensive homeless histories. Several had lived indoors for only a few years when I met them. Can you imagine people in their 60s and 70s who are homeless? plucking food from trash cans with their arthritic fingers? sleeping on disassembled cardboard boxes placed over heating grates?

This particular adult home was near a major New York City tourist attraction. People walked past it all the time without realizing what it was or who lived inside.

The residence itself featured a common area on the lower floor. There was a dining room that served three meals a day (8am, noon, and 5pm, with “tea time” at 3pm). Two clocks, one of which was broken, and an out of tune piano adorned the space. Chefs clattered around in the kitchen for 12 hours a day.

A large TV, a random collection of chairs, a pudgy sofa, and a leaning bookcase were in the living room. A computer over ten years old sat on an even older desk against the wall.

Halfway down the hallway—which had handrails every few feet—was the medication room. Against one wall were rows of shallow drawers, each labeled with the name and photo of a resident. The medication cart occupied one corner of the room. Underneath the large clamshell lid were circular slots that held small paper cups. Inside each cup were pills. A staff member would push the cart around during meals to administer medications.

If people did not attend meals, sometimes staff would go upstairs with the medication to the rooms of the residents. And sometimes the line between administering medication and coercion was blurred.

The rooms themselves resembled small hotel rooms. They each came furnished with a twin-sized bed and a pillow. Some of them also had a small writing desk and a chair. Residents were free to decorate and furnish their rooms as they wished. Almost all of them (who could afford it) bought televisions. Some hung framed art on the walls. Tchotchkes sat on nightstands. Others tacked photos of people—some they knew personally, some not—onto the worn walls.

Then there were residents—often those who had significant psychiatric symptoms—who did nothing to decorate their rooms. The walls were bare, the tiled floor was exposed, and when one sat in the solitary chair in the room, it looked like a scene from an institution.

They shared bathrooms, which were located out in the hall. There were no kitchens. If people could afford it, they put mini fridges and electric kettles in their rooms. The delivery guys from the local bodega routinely dropped off sodas, candy bars, meatballs, potato chips, and fruit.

Though a lot of people worked at the residence, there never seemed to be enough staff. Chefs cooked large quantities of food (that most of the residents did not like). Personal care staff performed thankless jobs: They helped residents shower, use the toilets, and dress themselves. Visiting nurses injected insulin and monitored blood pressures. Physical therapists encouraged people to walk more and taught them to walk safely, especially if they had walkers. Social workers helped coordinate appointments and offered informal counseling. An internist spent one day a week there.

The space I used for my office was literally the storage room for the recreational therapist. Amidst holiday decorations, arts and crafts supplies, and boxes of stuff, patients sat with me for 20 to 30 minutes. They would tell me about bedbug and cockroach infestations; deceased husbands; alcoholic mothers; instructions from God; “the one who got away”; the lack of fresh veggies and fruits with meals; the KGB officers in Times Square; constipation; bones in arms and legs dissolving overnight; talented children; the first time they were mentioned in the New York Times; the burden of using a walker; loneliness; the problems with liberals; the problems with conservatives; fears of death.

Though the internist and I worked there on different days, we worked together. He told me that I made his job easier. He definitely made my job easier. That experience alone strengthened my belief in the necessary collaboration between primary care and mental health (more on that later).

I am grateful that I had the chance to work with and learn from those patients. They taught me how to listen more and talk less. They demonstrated dignity in the midst of illness and aging. They showed me that people still want to learn and change, regardless of age. They reminded me not to take my youth and health for granted. They highlighted the value of laughter.

I learned that people, regardless of age, are just people. No one thinks that they will be 75 years old. Then, one day, you are.

Categories
Lessons

Our Best Teachers.

Inside the church bookstore were rows of religious icons. Some were the size of newspapers; others were smaller than a deck of cards. Saints, the mother of God, and the Son of Man himself gazed serenely back at me.

The icons made me think of Kelly.[1. Kelly is based on an actual person, but all the details are fiction.] She was the patient of another psychiatrist at the agency. Kelly came to the office every morning and greeted me with the enthusiasm of a puppy chasing a frisbee.

“HELLOOOOOOOO, DR. YANG! How are you? You look wonderful today! The angels above are shining a special light upon you! Have a blessed day!”

How could I not smile with a greeting like that?

One day, Kelly came in wearing a purple backpack. After saying hello, she asked, “Would you like the see my icon?”

Pushing aside the thought of a small pictogram on a computer screen, I nodded. She pulled the backpack off and carefully unzipped the bag. Using her left hand she pulled out a panel of wood about the size of a standard sheet of paper. The lacquered surface reflected the fluorescent lights overhead. A man with a beard and a halo around his head looked back at me.

“Who is that?” I asked.

“That’s St. Christopher,” Kelly said, tilting the icon so she could look at it. “I got it at church last week.”

“Tell me about St. Christopher.”

St. Christopher is the patron saint of travellers. We ask St. Christopher to watch over us and keep us safe. That’s why I always carry him around in my backpack.”

I hadn’t thought about Kelly in months. Upon stepping inside the church bookstore, though, I heard her melodic voice and saw her broad smile with clarity.

I don’t know how many patients I have met. Probably over a thousand. Have I seen two thousand patients yet?

All of those people have helped me become the doctor I am today. They all taught me something about health, illness, diagnosis, treatment, and coping. Some of them wanted nothing to do with me; others wanted me to do something that I could not or would not do. Some of them highlighted my weaknesses; others trusted my strengths.

Practically all of them demonstrated extraordinary patience with me, especially during their times of suffering.

I don’t think I ever thanked Kelly for sharing herself with me. She reinforced the rewards of taking an interest in patients as people. I hope that she continues to find comfort in St. Christopher.

Steve Jobs made a remark during the commencement speech that he made at Stanford:

Again, you can’t connect the dots looking forward; you can only connect them looking backwards. So you have to trust that the dots will somehow connect in your future.

I often don’t realize what lessons patients have taught me until months to years have passed. What I learned from one patient may not become apparent until another patient points it out. Sometimes a number of patients are trying to teach me the same lesson and I still don’t get it.

Patients aren’t dots. For doctors, they are some of our best teachers. Let’s not forget that.